The past eight months have not been good and it is why I’ve decided to come back to blogging.  Since last summer my headaches have come back with a vengeance and I’m in pain every single day without fail.  Here’s me in a few short sentences.

  • I have cluster headaches, not simply migraines. This fact has been made very clear to me and I’m finally listening to my neurologist this cycle.
  • I’m keeping a very good migraine diary. My iPhone app sucks and I need to rewrite it to be more suitable for all experiences.
  • My medication trials were not good enough in the past and I’m re-trialing Topamax, zonisamide and melatonin.  I’m even going today to discuss testosterone therapy with my neurologist – something I’ve discovered through NIH research.
  • I’m having 3-5 headaches a day, all on my left side. My nose drains, eye typically waters.  They last from 5 minutes to 15 minutes to 30 minutes.  Some last hours.  If I do not medicate they can go away on their own.  Typically I have to medicate with an NSAID like Tylenol or Alleve.  I am taking way too many NSAIDs.
  • In the last three months I’ve documented 235 headaches.

I plan on giving a better catch up soon.  I wanted to post something to get the ball rolling.


I'm a 20-something full time geek, part time student and photographer with a life partner, dog, house, and the two cars. I also have an ice pick in my left temple every day.


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